Understanding chronic pain in Neurofibromatosis Type 1 using the Neurofibromatosis Pain Module (NFPM)

  • Published on 03/29/2024
  •  Reading time: 4 min.

Frank D. Buono 1, Kaitlyn Larkin 2, William T. Zempsky 3,4, Lauretta E. Grau 5, Staci Martin 6

1 Yale School of Medicine New Haven Connecticut USA
2 Northern Illinois University DeKalb Illinois USA
3 Connecticut Children's Medical Center Hartford Connecticut USA
4 University of Connecticut School of Medicine Farmington Connecticut USA
5 Yale School of Public Health New Haven Connecticut USA
6 National Cancer Institute Bethesda Maryland USA


Neurofibromatosis Type 1 (NF1) is an autosomal dominant genetic disorder that can cause an individual significant chronic pain (CP). CP affects quality of life and daily functioning, yet there are limited effective treatments for CP within NF1. The current study describes the impact of CP using the Neurofibromatosis Pain Module (NFPM). The NFPM is a self‐reported clinical assessment that evaluates the impact of CP across multiple domains (e.g., interference, severity, tolerance,...


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