The disease burden of paroxysmal nocturnal hemoglobinuria in Denmark: Epidemiology, survival, healthcare resource utilization, costs, treatment gaps, and labor market attachment

  • Published on 09/02/2024
  •  Reading time: 6 min.

Carly Rich 1, Koo Wilson 1, Jens Olsen 2, Mikkel Pedersen 2, Henrik Frederiksen 3

1 Swedish Orphan Biovitrum AB Stockholm Sweden
2 Incentive Holte Denmark
3 Department and Research Unit of Haematology, Odense University Hospital and Department of Clinical Research University of Southern Denmark Odense Denmark


Objectives To establish epidemiology, healthcare costs, and labor market attachment in patients with paroxysmal nocturnal hemoglobinuria (Pt‐PNH) in Denmark.
Methods Data were from Statistics Denmark and the Danish Health Data Authority national population registers (2005–2021). Descriptive baseline statistics characterized the Pt‐PNH analytic population; ordinary least squares and adjusted Cox proportional hazards regressions measured...


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